This is the site for the unfortunates with Ehlers Danlos Syndrome. Tis for all of us to share what werks and what doesn't cuz there is no cure fer this shit. Any type welcome.
If you are unfamliar with this 'disease' there is a regular myspace 'account' with the same name that can lead you to some knowledge. :)


I encourage all of the members of this group to... not be afraid of asking anything and being honest to yourself as well as your answers.

As everyday passes, I am finding more and more things that I have known that were wrong with me are indeed related to EDS. Which can then be a platform for realizing... we know more than the doctors. I write this almost a year and a half after I or we started this group. I hear, here and there, negative things about myspace... but somewhere in my brain i just laugh... because this group has done wonders... for a lot of us.

WE are figuring out the cure(s). :)



..>