Two Foundations have been formed, Caylee's Hope Foundation, www.cayleeshope.com raising awareness and money for research into Childhood Cancer causes and cures and the Caylee's Heart Foundation, www.cayleesheart.org benefiting families who have or have lost a child with cancer; touching the hearts of those touched by childhood cancer.
Please help us to keep the promise alive!
Make a donation! Caylee's Heart foundation raises money for families in need who have a child with cancer.
Visit the page below if your heart is telling you to donate money to this cause:
Click to donate
**COMING SOON**
Information on how to get a caylee's hope or heart band
If you have a child with cancer or have lost a child to cancer and are in need of financial support, physical support or bereavement support and services, we may be able to help. Please send us an email with your name, address, child's name, diagnosis date, current status and your needs.
We will do what we can to help. No one should have to face this alone.
Special Prayers for Caylee
*Subject: Life in general
Body: Hi, my name is Lisa. A very good friend of mine sent me your page. I have kind of gone through the same thing. Only it was my husband and today the 12 of July is his birthday. My husband was diagnosed with Lymphoma on December 3 2004 and passed away November 22 2005. He was 37 years old. I posted a blog on my page about 4 this morning about his birthday. I am so sorry for your loss. Its such a hard road to travel. There are days , like today I wonder will I make it through. I have so much pain and anger inside. You feel all alone, but there are other people out there that have gone through what you have. I'm very glad my friend sent me your page. This has been a little help to me today. Maybe a light for you as well. Thank you.
In Memory is Dave and Caylee
God rest their souls
Lisa
*
..>
Faces of CHILDHOOD cancer..watch the video
Other stories
TORI!
Tori was born July 1st, 1994 (Canada Day), and was a beautiful little girl. She was a wonderful, caring and sensitive child.
Tori began having back and leg pain at the age of 5 . We visited doctors, but didnt get any answers for a couple of months. She was diagnosed with Stage IV Neuroblastoma just 3 weeks shy of her 6th birthday.
Tori endured the same gruelling treatment that most of the kids experience with Neuroblastoma, many rounds of chemo, surgery, stem cell transplant and radiation. Within 1 year, her cancer had returned.
At this point we were given a 5% chance of survival, and were given the option of doing nothing. We decided with Tori that we wouldnt give up.
The community of Stittsville, and many friends and family rallied around our family the summer and fall of 2001. Over $100,000 was raised to assist us with medical and travel costs, because we knew we would have to go out of Canada for more treatment.
Tori was put on more chemo, and once the disease was under control, we traveled to Sloan Kettering in NY City to do a somewhat experimental type of treatment called 3F8s. They were extremely painful, and unfortunately bought her no time.
Tori started back on the chemo, but had to discontinue after she experienced a serious infection and ended up in ICU for a while. From there we tried MIBG therapy in London, ON, which was her easiest treatment, but did little to stop the progression of the disease.
The disease at this point had spread to her lungs and liver and she was given weeks to live. This brings us to Christmas 2003, and she was 9 years old. We had a wonderful Christmas and New Year, where she felt great and could do most things that children do. That, I guess, was our miracle! In January 2004 she quickly deteriorated, and she had to be admitted to hospital because we were unable to control the pain in her belly. She passed away within days on January 16th.
Tori, with her infectious smile and passion for life became an inspiration to many, as friends, family and community did everything they could to give Tori a chance. As it turned out, it was Tori who was giving us something special. Toris courage and strength throughout her battle, inspired all to carry on each day, and appreciate the little things in life. She taught us not worry about the petty things, and to live each day like its your last.
LEXY
Lexy was diagnosed with Neuroblastoma Stage IV on November 2,2001. Her primary tumor was on her left adrenal gland,but the cancer was also in her bone marrow and long bones. Lexy went through an induction phase 5 rounds of high dose chemo, Surgery, 1 additional high dose chemo with stem cell transplant,11 Rounds of Radiation to her Abdomin, Accutane and Vaccine Therapy Study. Lexy went in remission on March 13, 2002. Lexy remained in remission for 19 months. Scans on November 19, 2003 showed that Lexy's Neuroblastoma had returned. Lext tried fenretinide, which did not work for her, so on Jan 12,2004 her broviac was put back in and she began iv chemo. She did 10 rounds of chemo and 13 radiation treatments.This stopped working for Alexia in Sept 2004. In Oct 2004 we moved to San Francisco, CA to begin MIBG therapy. Just before Christmas in 2004 after scans we realized this treatment also had not worked for Lexy. After 6 more rounds of iv chemo Lexy lost her fight with Neuroblastoma. Throughout all of this her spirits remained high. Lexy enjoyed life to the best of her ability. She was able to see her baby brother, go see Mickey Mouse and go to Nana and Papa's before she passed. Lexy will be missed, not only by her family, but by all those who knew of her. She was truly an Angel on Earth
EMMA GRACE
Born on earth: September 21, 2000
Danced thru Heaven's Gates: June 6, 2005
"Jesus said, 'Let the little children come to Me, and do not hinder them, for the kingdom of heaven belongs to such as these." Matt 19:14 NIV
TREY
He was diagnosed on Sept.29,2002 with Neuroblastoma, Stage IV. After many chemotherapy agents, stem cell transplant, surgeries, and 3F8 antibodies in New York Trey was cleared of this disease, only to relapse in January 2004. Trey then went on experimental treatments, Irinotecan, Topo/Cyclo combination, back on Irinotecan and then Fenretinide. Trey was scheduled to begin the MIBG protocol in Philadelphia until we learned his cancer had spread too far. Trey went home on hospice and we were told not to expect anymore than 2 days. Trey stayed with us 6 days before gaining his angel wings on December 22, 2004.
OLIVIA
Olivia left the way she lived, full of life until the end. Instead of the long drawn-out parting we had dreaded, her decline was rapid. She started needing a little oxygen on Friday, and over the weekend she needed more. We decided not to take her into the hospital over the weekend, since little seems to happen there over the weekend anyway, and we wanted her to be home. But we didn't know why she needed more and more oxygen, since the fungal infection they diagnosed was supposed to be slow moving. We needed answers. So we went to the clinic Monday morning, with the plan of going into the hospital where they could run some more tests. By then she was breathing very hard, even with oxygen. In the intensive care unit they gave her still more air, but she was working very hard to draw enough breath. The poor child was scared. We had a hard time accepting that there wasn't more they could do, since they didn't really know what was causing this rapid decline. Had they told us the tumors had simply grown too big, and there was nothing they could do to stop them, we would have been able to accept that, in some fashion at least, and would have just tried to make her as comfortable as possible. We've now come to understand, and are trying to accept, that her body had been working so hard to keep herself going for so long, that it just finally gave out. We really had no idea how hard she had been working, for so long.
..>
Maddie's Hope is to help find a cure for cancer in children.
Since Oct. 6, 2003, when a rare form of cancer was discovered in her chest, Madelyn "Maddie" Dulle, 3, of Turtlecreek Twp. has endured three major surgeries, chemotherapy and radiation. Her parents took her to Middletown Regional Hospital when she didn't respond to treatment for upper respiratory problems. "We thought it was pneumonia," said her mother, Abbie Dulle, 28, a manager at the Lazarus-Macy's store at Dayton Mall.
Last fall, the Dulle family was engrossed in the construction of a home south of Red Lion in Warren County, and anxiously awaiting the arrival of Emma, now 4 months old. Both parents work full time, Brian Dulle as a deputy with the Warren County Sheriff's Office.
After the first surgery, Maddie began 12 months of chemotherapy, as well as radiation to kill other cancer - a greater concern because the tumor ruptured before removal. "The first round (of treatments) went OK. It was downhill from there," her mother recalled last week, while attending to Maddie's demands for art supplies.
For four months, mother missed work, while she and her daughter spent most of their time in the hospital. There was a seizure, as well as two more major surgeries: one to remove what turned out to be scar tissue, the other to correct a heart problem discovered during testing.
"She's never spent a night without me. I just feel she's not going to do it alone," her mother said.
Maddie lost her hair, but not the will to keep fighting. "Maddie is a fireball," DeLaat said. "She runs their household." Ten months later, tests show no signs of cancer.
Originally Maddie's Hope was the name of a team in last year's American Cancer Society Relay for Life. "It went from one team with 15 walkers to four teams with 80 walkers," Abbie Dulle said.
Abbie Dulle also hopes to educate others about cancer in children through a nonprofit called Maddie's Hope. The whole family's life has changed forever.
"It kind of slaps you in the face. It's one of those things. You think . . . Never me." Brian Dulle said. "The little things don't bother me anymore."
http://www.orgsites.com/oh/maddieshope/
DONT GIVE UP MAX!!
..>
..>
A short video about times and memories to remember and cherish because for some children, thats all they will ever remember. So many of the times named are taken for granted by people everyday, all the childhood and teen memories some kids won't even live to see.
Remember these words:
"Its these moments that we live for that are sometimes taken for granted in so many ways...our hopes, our dreams seem endless, the possiblilty of a future is ours, we can be anything when we grow up. Its these things that not all of us will have, its these things that some may lose. Its these things that with the coming of an illness can be taken away forever, our innocence, our youth..our hopes and our dreams, lost. So remember never forget because for some thats all they will ever have."
|