Disabled civil rights lots of information URL:
http://sglalonde.tripod.com/
Political letters and legal documentation in Group Photos!
To have the Supreme Court Olmstead decision 6 to 3 Law enforced and have community-based programs for all who qualify for med waiver and consumer directed care which will save the taxpayers approximately 50% and provide opportunities for jobs instead of having disabled institutionalized in a nursing home. Also the George W. Bush presidential Executive Order 13217.Which means it has been designated a nationwide problem! To be Moses for all disabled people to remove the yoke the burden on our disabled back and set disabled people free.
Web Page Updated March 18, 2009
Disable Life Liberty and Pursuit of Happiness petitiononline
Scott G. LaLonde
Petition online:
website: http://www.myspace.com/disabledcivilrights
website: http://groups.myspace.com/pt2disabledcivilrightslifeliberty
website: http://groups.myspace.com/disabledcivilrightslifeliberty
E-mail
The Supreme Court has passed a law but government does not want to enforce it. They think if they keep it secret and no one knows what they're entitled to they won't have to do it. They are quite correct but I'm not going to let that happen. Estimate based on 30% cost of living increase based on fuel costs $12.00 75 extra dollars allotted to centers for independent living for each client based on me receiving 21 hours a week $3.57 Total cost now $40+$12.00+3.57= $55.57 agencies Medicaid was paying $40 an hour for my care for my care providers agencies, care providers are only receiving $10 an hour. Show me where the money went. This is not only for the disabled it is also for the elderly is at all possible staying in the community is better for everyone. It would also provide more jobs for people that need work. In the long term it makes sense and costs less but the government doesn't think the way we do. Right now there is lobbyists asking for more money for nursing homes. I spent 28 days in a nursing home and I was always last on the list they have two certified nursing assistants and one registered nurse RN for approximately 20 patients. And the people that need more care say an hour and a half which is how much care I need in the morning and evening. And I can only move my head it was very difficult to get attention to get the help and care I needed!
http://www.accessiblesociety.org/topics/ada/olmsteadoverview.htm
At the very bottom of document the cost differential both methods of care. Community-based med waiver and consumer directed care programs wherever possible are less expensive for the taxpayer and better for the individual involved! Think about let's say you're a disabled individual like myself they'll give me carte blanche to be put into a nursing home or institution no questions asked. But like most other people at the time individuals like myself have to find out that are other option they will not tell you. It other words the disabled population is segregated that is why I started Disabled Civil Rights we have a choice to choose where what to live where ever possible. Which is a violation of someone's civil rights to be told where we have to live did not be given any choices!
The commissioners' brief and another, filed by 30 national and seven Georgia organizations, document the cost differential between institutional and community care. For example, the daily cost of care in the mental retardation unit at Georgia Regional Hospital-Atlanta, where the women were confined, was $283 in 1996, compared to the daily cost for community services of $118 to $124. National studies cited in the briefs show a similar pattern. For example, one compared community costs, including housing, of $60,000 per year for a discharged psychiatric patient to $130,000 for institutional care.
Members of the 110th US Congress Campaign Letter, State Governors and Lt. Gov. what have you done to enforce this legal precedents set by the Supreme Court in your state. To make them aware of Nationwide Problem! The Supreme Court Olmstead decision, Presidential mandate Executive Order 13217 of June 18, 2001 Community Based Alternatives for Individuals with Disabilities which are federally funded by Medicaid and Medicare Census 2005 50 million families reporting at least one person with disability in family or more.
Scott G. LaLonde
Petition online: http://www.petitiononline.com/Ord13217/petition.html
November 28, 2007
All Honorable Presidential Candidates,
November 18, 2007
The Honorable State Governors and Lieutenant Governors Faxed,
November 10, 2007
All Members of the 110th US Congress Faxed,
October 6, 2007
All 100 Honorable Senator Faxed,
August 27, 2007
Honorable Presidential Candidates, senators and representatives, Governor Charlie Crist, Lt. Governor Jeff Kottkamp, Congresswoman Ileana Ros-Lehtinen18 District of FL, Senator Bill Nelson, Senator Mel Martinez, Rep. Ron Saunders 120 District of Florida, Larcenia J. Bullard D - FL (39), U.S. House of Rep. FL, 14,16,17,19,20,21,22, 23, 24,faxed.
I am writing about an extreme situation affecting people with disabilities in the State of Florida. This denial of basic civil rights has led to individuals such as myself who are contributing members of society to be confined to their beds 18-20 hours per day against their will. I am asking that you as an elected official tell me how you can help to remedy the situation.
I am a 42 year old man with an extreme case of muscular dystrophy known as Becker’s Muscular Dystrophy. I volunteer at a local elementary school working with young children. I am a mentor, a friend, and an educator. I live in my community, I shop here and I play here just like you. Yet I am dependent upon others for my care as I only have function from my neck up and can not tend to my functions of daily living. Each day I require assistance to bathe, prepare meals, and to be put into and out of bed. Because of things such as the Olmstead Decision and Presidential Executive Order 13217, I have been given the right to live in the community and receive services, rather than being institutionalized away from my family and the community. Medicaid waivers have helped make this a reality for many individuals like myself. Unfortunately, I fell through the cracks as have many other individuals in my situation.
Even though I was placed on the waiver program, was protected by Presidential Executive Order 13217 which entitles me to care in the community, and dollars were set aside for my care, my county subcontracted out these care services to an organization that only did business from 8:00-5:00 daily. This meant that I would be taken out of bed in the morning at 8:00 and put back in bed around 4:00 each evening to face 16 hours in that prison. This is unconscionable. I suffered this unbearable fate for about 8 years and was even forced to pay out of my own pocket if I wanted to get out of bed at all on weekends or on holidays when the agency was closed.
Recently I was placed on another program known as CDC+ which is working well for my care and puts more choice and decision with the individual. However I can not remain quiet as so many others still face the awful fate that I endured for 8 years. Even worse Governor Charlie Crist is now cutting the waiver programs so that many people are being forced off or will have reductions in care. I want to know what you will do to stop these cuts, and also to ensure that those who are on the Medicaid Waiver program will have care that goes beyond the 8:00-5:00 Monday-Friday schedule and that no one will be forced against their will to spend 16 hours per day in bed. I eagerly await your reply.
Sincerely,
Scott G. LaLonde
Click on Barock Obama's letter to enlarge.
I have
Becker’s Muscular Dystrophy.
Logger version more detailed interview style.
Meeting former Governor Jeb Bush
Barack Obama's statement disabled "Thy Shouldn't be shunted off into institutions but we should provide home care where ever possible."
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