Help us create awareness for Epidermolysis Bullosa!
Epidermolysis Bullosa is a brutal and lethal skin disorder. While many children, mostly those with the Simplex form have a tough life but they live mostly as normal as possible, children with the more severe forms of EB live a tortured existence of daily pain and, in the more severe forms, such as Recessive Dystrophic, frequent medical procedures, with little hope of recovery or normalcy. Yet we must always remind ourselves that inside the disfigured body lives a child who wants to enjoy all the things in life a normal child enjoys, to play, to laugh, and to learn, a child with all the potential and need for joy of a normal child.

HELP US! We need awareness! Put a blinkie on your MY SPACE page you may adopt at:
http://www.ebinfoworld.com/blinkies2.htm
and link it to:
http://www.ebinfoworld.com

Thank you from the bottom of my heart!!

Silvia and family

HELP THE EB CHILDREN! Sign the
petition for the Wound Care Bill TODAY and HELP US FIND A SPONSOR FOR THE
BILL!