Welcome to the MySpace group for those suffering from MdDS (Mal de Debarquement Syndrome).
Here, you will find caring people who understand what it's like to live with this rare balance disorder. This is a public group, our members are welcomed from many countries, so feel free to contact us.
MdDS is typically diagnosed when a person reports a persistent rocking feeling (though they are not necessarily rocking). This usually follows a cruise, other motion experience or can also come on spontaneously. Your doctor(s) may throw up their hands because your vestibular tests all prove negative. Many doctors believe this came about when your brain did not return to a normal sense of balance after adapting to a motion experience. A major indicator is that most of us feel BETTER while driving or riding in a car.
You may also find pages of information about Mal de Debarquement Syndrome at: MdDS Foundation You can donate to the MdDS Balance Disorder Foundation using PayPal. Go to the Foundations site and click on the PayPal link at the bottom of the home page, or CLICK THE LINK BELOW. THANK YOU FOR YOUR SUPPORT! PayPal Link
Dr. Yoon-Hee Cha at UCLA Medical Center is currently researching this horrible disorder. There are only so many Government Grants, and unfortunately this disorder often gets overlooked. To support our fight for understanding and a cure please send donations to the Department of Neurology at UCLA for Dr. Cha's research. All money sent is tax deductible. Please send to:
Attention: Luba Skoropad
Department of Neurology Finance Office
David Geffen School of Mediciine at UCLA
710 Westwood Plaza, C-231 RNRC
Los Angeles, CA 90095-1769
Make checks payable to:
UC Regents
PLEASE MAKE SURE TO WRITE ON THE MEMO OF THE CHECK THAT THIS MONEY IS TO BE FOR DR. YOON-HEE CHA.
If it is easier to donate online then please visit this website, and click How to Help. UCLA Neurology
MAKE SURE IN THE COMMENTS SECTION TO WRITE DR. CHA'S NAME. OTHERWISE THE MONEY WILL GO TO A GENERAL NEUROLOGY FUND.
Amy